Proactive and Integrated Management and Empowerment in Parkinson’s Disease (PRIME)
Evaluating a new integrated care model to improve quality of life and save costs
Driven by the wishes of patients and developed in co-creation with patients, Radboudumc and Bristol University will implement and evaluate an innovative care model that includes: (a) Standard care paths for all hospitals within the region; (b) easy access to specialized nurses who proactively detect problems (before these become debilitating to patients and costly to society), readily answer questions, organize referrals and coordinate care; (c) regional teams of specialized professionals working close to the patients’ homes supported by a digital collaboration platform; (d) home-based monitoring and self-management by well-informed patients. In this project a public-private partnership supported the development of this integrated approach with state-of-the art technology to facilitate communication, collaboration and home-based care.
This novel approach addresses the urgent need to reform healthcare, to avoid unnecessary disability for patients with chronic conditions and to keep healthcare accessible and affordable for future generations. As proof-of-concept, we tested our approach in 3,500 patients with Parkinson’s disease (PD), being the fastest growing neurological condition worldwide, and also an ideal “model condition” to gain crucial insights for future scaling to many other chronic conditions. The experiment has been conducted in both the Netherlands and UK, allowing us to benefit from the rich and complimentary expertise in both countries.
Our approach addresses all core needs of patients: we bring care back home (which is a service to patients, while also providing most relevant insights), we empower patients (thus facilitating self-management), we adopt a proactive approach (instead of waiting for medical problems to derail) and we integrate all layers of care (thereby avoiding frustrating searches among both patients and professionals). We expect this integrated model to markedly improve patients’ health and reduce avoidable costs.
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